Join Date: Mar 2000
Location: Northern Catskill Mountains, NY
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OT - Health down...pretty bummed
Went to my new endocrinologist yesterday. Got handed a bag of bum news.
See, last November my prescription ran out for the drug that I was taking to combat the pituitary tumor I have growing inside my skull. At that time, I was supposed to go back for a follow up and another MRI. Since the drug was working and I was feeling better, I had no sense of urgency.
Then at the end of December, my company changed insurance plans and my treating doctor wasn't part of the plan. That was also the time I started noticing that I was relapsing back to the way I was before treatment. But at the time I had other things on my mind, in particular, the trip to Moab,UT with my Dad and son that I was planning for a year. I feared that something was wrong again and it would have affected those well-made plans. Little did I know how correct I was.
After I returned from the trip, it was apparent that my tumor was screwing me up again. This was coupled by a very strong case of DENIAL on my part. Shannon (my lady) finally took control and found a doctor for me (experienced pituitary specialists are quite hard to find BTW).
So yesterday, almost 8 months to the day since I was supposed to go to a follow-up, I was in a new doctor's office.
The first bad news is that my prolactin hormone level is higher than when before I stated treatment and testosterone is nearly non-existant, meaning my tumor has regrown and probably larger than before. So I lost major ground and then some.
But worse was what showed up in other bloodwork that he had done, bloodwork that hadn't been done by the last doctor. Two critical liver enzymes were quite high, about as high as would be expected in an alcholic. Problem is, I'm no lush. Only drink on occasion. I'm also anemic, another indicator of a bum liver. All signs point to possible Hep B or Hep C.
Great, liver problems too. Problem is there are only two drugs to treat the tumor that I have and both raise major havoc with (cause damage to) the liver. BUt I have to take the tumor drug, and have to fix my liver at the same time.
Sometimes fate works in funny ways, and I try not to question the reasoning of my higher power. Right now I'm taking comfort in knowing if I hadn't blown off the follow-up for so long, the testing of my liver wouldn't have been done and this new "problem" may have gone unnoticed, with the drug causing more damaged to an already damaged liver. Every cloud has a silver lining, I guess.
So I'm at home today and going to another doctor about my liver. And when I return home, I start the tumor drug that makes me sick for the rest of the day. A drug that I now know I will be on for the rest of my life. And since I turn 35 tomorrow, I'll be taking it for as long as I've been in this world (hoping to make it to at least 70).
Sorry to just rant on, but I'm really bummed about this. I consider many of you good friends, and some have become lasting family friends. As as the saying goes, we get by with the help of them. I guess I just needed to get this off my chest and I actually feel better that I did.
Thanks all, now back to our regular programming.