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post #1 of (permalink) Old 06-04-2002, 07:28 AM Thread Starter
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OT - Health down...pretty bummed

Went to my new endocrinologist yesterday. Got handed a bag of bum news.

See, last November my prescription ran out for the drug that I was taking to combat the pituitary tumor I have growing inside my skull. At that time, I was supposed to go back for a follow up and another MRI. Since the drug was working and I was feeling better, I had no sense of urgency.

Then at the end of December, my company changed insurance plans and my treating doctor wasn't part of the plan. That was also the time I started noticing that I was relapsing back to the way I was before treatment. But at the time I had other things on my mind, in particular, the trip to Moab,UT with my Dad and son that I was planning for a year. I feared that something was wrong again and it would have affected those well-made plans. Little did I know how correct I was.

After I returned from the trip, it was apparent that my tumor was screwing me up again. This was coupled by a very strong case of DENIAL on my part. Shannon (my lady) finally took control and found a doctor for me (experienced pituitary specialists are quite hard to find BTW).

So yesterday, almost 8 months to the day since I was supposed to go to a follow-up, I was in a new doctor's office.

The first bad news is that my prolactin hormone level is higher than when before I stated treatment and testosterone is nearly non-existant, meaning my tumor has regrown and probably larger than before. So I lost major ground and then some.

But worse was what showed up in other bloodwork that he had done, bloodwork that hadn't been done by the last doctor. Two critical liver enzymes were quite high, about as high as would be expected in an alcholic. Problem is, I'm no lush. Only drink on occasion. I'm also anemic, another indicator of a bum liver. All signs point to possible Hep B or Hep C.

Great, liver problems too. Problem is there are only two drugs to treat the tumor that I have and both raise major havoc with (cause damage to) the liver. BUt I have to take the tumor drug, and have to fix my liver at the same time.

Sometimes fate works in funny ways, and I try not to question the reasoning of my higher power. Right now I'm taking comfort in knowing if I hadn't blown off the follow-up for so long, the testing of my liver wouldn't have been done and this new "problem" may have gone unnoticed, with the drug causing more damaged to an already damaged liver. Every cloud has a silver lining, I guess.

So I'm at home today and going to another doctor about my liver. And when I return home, I start the tumor drug that makes me sick for the rest of the day. A drug that I now know I will be on for the rest of my life. And since I turn 35 tomorrow, I'll be taking it for as long as I've been in this world (hoping to make it to at least 70).

Sorry to just rant on, but I'm really bummed about this. I consider many of you good friends, and some have become lasting family friends. As as the saying goes, we get by with the help of them. I guess I just needed to get this off my chest and I actually feel better that I did.

Thanks all, now back to our regular programming.
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post #2 of (permalink) Old 06-04-2002, 07:35 AM
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Re: OT - Health down...pretty bummed

sorry for the bad news.... but at least they caught it soon enough to treat it hopefully
post #3 of (permalink) Old 06-04-2002, 07:56 AM
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Re: OT - Health down...pretty bummed

Tim, Really sorry to hear the news. We will keep you in our thoughts and prayers and here if you need us. Jim
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post #4 of (permalink) Old 06-04-2002, 08:07 AM
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Re: OT - Health down...pretty bummed

Well try to stay up as much as you can. The good thing is
science is making strides all the time, so you may not be on the meds your whole life, a new treatment may be developed for it. Follow the MD's orders you bonehead! As you know I am going under the knife next week, and am facing a long recovery.
I have come to grips with the surgury but the recovery still bothers me, and of course how my dad died really makes me want to go to a hospital too. I will be in contact, keep the faith and drive on! Remember there is ALLWAYS someone worse off than you!
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post #5 of (permalink) Old 06-04-2002, 08:18 AM
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Re: OT - Health down...pretty bummed

Hey Tim,

Keep your chin up, dude. Remember your mental attitude has a good deal to do with how well your own body can help deal with your issues.

What Glenn said is important, too. I am a lifelong asthmatic. I was too sick to go to school 3 out of 5 days a week and by the time I was in my 20s I had two cardiac arrests and 4 respiratory arrests realted to my problems. There wasn't a hell of a lot doctors could do, prescribing everything they had in massive doses just couldn't keep it down.

Then, in the last handful of years, maybe 5 or 7, huge advances were made in the treatment of asthma. I'm on two different meds for it and it has all but eliminated the possibility of an attack.

So do what your doctors tell ya, regardess of how you feel, do whatever you can to keep your mind off it and on something fun and positive (like wheelin!) and let everything work.

Besides, I need to win more cool expensive parts for my Zuk and if you aren't there to offer them up for raffle, I don't know where I will get them from.

[img]images/icons/wink.gif[/img]

daxe
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post #6 of (permalink) Old 06-04-2002, 08:52 AM
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Re: OT - Health down...pretty bummed

Aww Tim, I am bummed to hear this! Stick with the program, and have faith, man. Makes you wish we were like Zukes - just swap that aluminum diff can for a steel one, and press on. You'll be in our thoughts and prayers.

Bob
post #7 of (permalink) Old 06-04-2002, 09:01 AM
 
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Re: OT - Health down...pretty bummed

Tim,

You are in my prayers and remember that a good portion of recovery is your mental attitude. Also remember that you DO have a good network of friends here and if you need anything we're here for ya'.
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post #8 of (permalink) Old 06-04-2002, 09:10 AM
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Re: OT - Health down...pretty bummed

Tim, that sounds pretty rough. Life has a funny way of reminding us just how fragile and precious we all are sometimes. Best of luck with this situation, you know all of us here will keep you in our thoughts.
post #9 of (permalink) Old 06-04-2002, 09:50 AM
 
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Re: OT - Health down...pretty bummed

Tim, you are in my prayers. May God shine his grace on you and your family.
Lendell Blosser
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post #10 of (permalink) Old 06-04-2002, 10:09 AM
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Re: OT - Health down...pretty bummed

Tim, Sorry for your bad news, but keep in mind that with the right care and attitude, you can beat just about anything! I would suggest you maybe look into Chiropractic care, if you'd like, I can offer you some insight on how it could help you out. This offer goes to anyone who wants the real deal on Chiro care. I have been seeing a chiropractor for about a year and a half, I feel better, and have not even had as much as a cold since care began. I will do my best to explain why if anyone is interested.
Keep your head up and think possitively, and the higher power will pull you through.
R/T
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